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Organizations Listings :
Langer-Giedion Syndrome Association
international support organization for people and families living with Langer-Giedion Syndrome and related disorders.
Lois Joy Galler Foundation
acquires the funds needed to conduct research and develop methods of preventing or curing Hemolytic Uremic Syndrome (HUS).
Medsupport: Friends Supporting Friends
provides 24 hr. support on the net via forums, chats, information, newsletters and articles in text and real audio, pen pals, members stories, and our own television show.
The Melungeon Health Education and Support Network
Dedicated to the health of Melungeon descendants who have one or more of the five major Mediterranean illnesses, including Behçet's Syndrome and Sarcoidosis.
Mia Hamm Foundation
supporting research of bone marrow diseases.
Myoclonus Research Foundation
National Association for Down Syndrome (NADS)
news, resources, and scientific information related to down syndrome from NADS, a not-for-profit organization serving people in the Chicago metropolitan area.
National Association for Incontinence
National Gaucher Foundation
The National Pancreas Foundatio
Committed to advancing education and research related to diseases of the pancreas, including pancreatitis and pancreatic cancer.

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